Childhood Cancer Webinar Series
September 25th: Register here
Childhood cancer advocates, families, researchers, and survivors are invited to join us at 3pm EST on September 25th for a discussion of the challenges facing childhood cancer survivors as they transition out of pediatric care and into young adulthood.
Gregory Aune, M.D.
Assistant Professor of Pediatrics at UT Health San Antonio’s Greehey Children’s Cancer Research Institute
Dr. Aune battled Hodgkin’s Lymphoma as a teenager, an experience that inspired him to become a pediatric oncologist. Today, he is a national and international leader in the field of childhood cancer survivorship and a staunch advocate for more funding and improved care of the nation’s 500,000 childhood cancer survivors. (Bio)
Julia Rowland, PhD
Senior Strategic Advisor at Smith Center for Healing and the Arts
Dr. Rowland was formerly the Director of the Office of Cancer Survivorship at the National Cancer Institute, and she is widely recognized as a national and international scholar, researcher and leader in the psychosocial aspects of cancer care broadly and cancer survivorship specifically. She was also the recipient of our 2018 Rosen Research Award.
MID-YEAR ADVOCACY UPDATE | JUNE 2019
Six months into the 116th Congress, we provide childhood cancer advocates an update on where things stand with various pieces of legislation that could impact children with cancer and childhood cancer survivors, including implementation of the STAR Act and ACE Kids Act, progress of the CLINICAL TREATMENT Act, and a survivorship initiative in the works that focuses on transitions of care.
POST-WORKSHOP UPDATE ON CHEMO-INDUCED HEARING LOSS IN PEDIATRICS | MARCH 2019
The pediatric patient population with chemotherapy-induced hearing loss represents a segment of the cancer survivor community with a severe burden of disease with great unmet medical need. An externally-led, FDA-approved Patient Focused Drug Development (PFDD) meeting was held on September 13, 2018 near Washington, DC to explore these issues in-depth. In this March webinar, we provided an update on progress since that meeting -- and next steps.
HOPE ON THE HORIZON – NEW TREATMENTS FOR CHILDHOOD CANCER | JANUARY 2019
On January 30th, we hosted a webinar about the latest ground-breaking developments in childhood cancer research, with a specific focus on immunotherapy and precision medicine. For highlights, visit this blog post. Full recording:
ADVOCACY TOOLS AND TACTICS | JUNE 2018
This webinar was designed for childhood cancer advocates - beginners and experts alike - who want to learn more about effective advocacy practices. We heard from several advocates around the country who've been achieving progress around childhood cancer policy issues. This webinar aims to arm you with creative new ideas and impactful tools to take to your own local legislators or statehouse in pursuit of a brighter future for children with cancer.
NAVIGATING THE CHILDHOOD CANCER JOURNEY | JANUARY 2018
FINANCIAL ACCESS ISSUES | april 2017
This webinar helped us delve into the issue of financial toxicity, as we start to explore what we as policy advocates can do to work toward effective solutions to lessen the financial burden on families in our community.
CHILDHOOD CANCER AND THE TRUMP ADMINISTRATION | december 2016
This webinar previewed the changing policy landscape in Washington, DC and what a new Congress and Administration may mean for childhood cancer in 2017 and beyond: