Childhood Cancer Webinar Series
SURVIVORSHIP | SEPTEMBER 2019
Childhood cancer advocates, families, researchers, and survivors joined Dr. Greg Aune and Dr. Julia Rowland for a discussion of the challenges around the long-term care of childhood cancer survivors..
MID-YEAR ADVOCACY UPDATE | JUNE 2019
Six months into the 116th Congress, we provide childhood cancer advocates an update on where things stand with various pieces of legislation that could impact children with cancer and childhood cancer survivors, including implementation of the STAR Act and ACE Kids Act, progress of the CLINICAL TREATMENT Act, and a survivorship initiative in the works that focuses on transitions of care.
POST-WORKSHOP UPDATE ON CHEMO-INDUCED HEARING LOSS IN PEDIATRICS | MARCH 2019
The pediatric patient population with chemotherapy-induced hearing loss represents a segment of the cancer survivor community with a severe burden of disease with great unmet medical need. An externally-led, FDA-approved Patient Focused Drug Development (PFDD) meeting was held on September 13, 2018 near Washington, DC to explore these issues in-depth. In this March webinar, we provided an update on progress since that meeting -- and next steps.
HOPE ON THE HORIZON – NEW TREATMENTS FOR CHILDHOOD CANCER | JANUARY 2019
On January 30th, we hosted a webinar about the latest ground-breaking developments in childhood cancer research, with a specific focus on immunotherapy and precision medicine. For highlights, visit this blog post. Full recording:
ADVOCACY TOOLS AND TACTICS | JUNE 2018
This webinar was designed for childhood cancer advocates - beginners and experts alike - who want to learn more about effective advocacy practices. We heard from several advocates around the country who've been achieving progress around childhood cancer policy issues. This webinar aims to arm you with creative new ideas and impactful tools to take to your own local legislators or statehouse in pursuit of a brighter future for children with cancer.
NAVIGATING THE CHILDHOOD CANCER JOURNEY | JANUARY 2018
FINANCIAL ACCESS ISSUES | april 2017
This webinar helped us delve into the issue of financial toxicity, as we start to explore what we as policy advocates can do to work toward effective solutions to lessen the financial burden on families in our community.
CHILDHOOD CANCER AND THE TRUMP ADMINISTRATION | december 2016
This webinar previewed the changing policy landscape in Washington, DC and what a new Congress and Administration may mean for childhood cancer in 2017 and beyond: