Introduced in May 2026Lainie Jones Comprehensive Cancer Survivorship Act
About the Lainie Jones Comprehensive Cancer Survivorship Act (HR 8839)
Since our founding, Children’s Cancer Cause has made survivorship a key pillar of our work toward our vision of a long, healthy life for every child with cancer. The Lainie Jones Comprehensive Cancer Survivorship Act will help create a more coordinated, patient-centered system that supports survivors not just during treatment but throughout the rest of their lives.
Children's Cancer Cause worked closely with Hill staff for the last several years on drafting the bill and helping to ensure pediatric cancer survivor provisions were included in its bipartisan introduction in the prior Congress. In May 2026, this bill was reintroduced in the House of Representatives.
Several of the provisions in this comprehensive survivorship legislation directly address issues faced by the nation's 521,000 childhood cancer survivors along the continuum of survivorship care.
Support for the Bill
Children's Cancer Cause joins with more than 50 national organizations in supporting this bipartisan legislation.
We are deeply grateful to Representatives Debbie Wasserman Schultz (FL-25), Brian Fitzpatrick (PA-1), Mark DeSaulnier (CA-10), and Joe Wilson (SC-2) for leading the bill's reintroduction in this Congress.
Press Release from Capitol Hill (5/14/26)
The Need
Childhood cancer survivors face a lifetime of health challenges due to their treatment. More than 95% of childhood cancer survivors will have a significant health related issue by the time they are 45 years of age.
Many transition into primary care without a survivorship care plan and are unprepared for the significant health issues they may face, including hearing loss, infertility, and cardiac late effects.
Pediatric Survivorship Provision
We're particularly proud that this bill would ensure Medicaid coverage of healthcare transition services for survivors of childhood and adolescent cancer,a provision Children's Cancer Cause helped develop and provided technical feedback on.
This bill will help survivors better understand their care and avoid falling through cracks after treatment.
Full bill text available here.
Other Provisions in the Bill
Address workplace and financial challenges and supportive care services aimed at improving quality of life
Direct the Department of Health and Human Services (HHS) to study new payment models that support high-quality survivorship care
Convene a stakeholder meeting to evaluate the use of information technology to improve transitions in care
Establish an Office of Cancer Survivorship within the National Cancer Institute (NCI) to lead national efforts focused on improving survivorship care and outcomes
Require a national progress report on the evolution of survivorship care since enactment of the National Cancer Act of 1971
Early legislative support is critical for building momentum in Congress. Adding cosponsors early helps demonstrate strong public support and increases a bill's visibility.
Join us in asking Congress to support cancer survivors by becoming early cosponsors of the Lainie Jones Comprehensive Cancer Survivorship Act.
“We need more support for childhood cancer survivors, not just during treatment but after too. Research for better treatments and follow-up care is really important.
Survivors should have access to healthcare and more support as we get older, so we can live healthy lives.”
- Childhood Cancer Survivor
Children’s Cancer Cause Survey (2025)